unsupportive husband

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[HerbLady]

i have had EBV for 14 years but i never knew that you could keep getting symptoms so i never knew why i always felt sick. when i first met my husband he told me that it was all in my head. now that i KNOW that case of mono i had when i was 10 is causing this, he just doesn't care. when i tell him how much i ache he thinks i'm making it up. i don't know what to do, i have shown him this website & the list of symptoms, but he just isn't understanding how serious this is or how symptoms can just strike out of the blue...... does anyone have any advice??
Sasha

[faith]

I'm sorry it took me so long to read this HL and I'm very sorry your husband is not supportive.
Just keep showing him any and all info that you gather and hopefully the light will go on.

[Kaz]

HL, my friend.  I too am sorry I have not read your message.  I am in no position to judge anyone for sure.  But my goodness you need support!  YOU NEED HIS SUPPORT!  This is tough alone and I believe that NOT having his support will only prolong the healing process.  If you would, please tell him I said so.  We know the triggers and there is not one single trigger bigger than stress which leads to stress and that is stressful! (smile)  Herb L, you have my support.  I understand.  I am praying for you.  I want you to get better.  HL, do you know how to eat an elephant?....One bite at a time.  Same with an unsupportive husband, one day at a time and he will come around.  Plop some research from Dr. Klimas in front of him and the science that cannot be argued about.  I am sure your husband is reasonably intellegient and will get it.  You go and you live and you know we know and we support you!!!!

[HerbLady]

thanks to both of you... this forum has been a HUGE help/relief/life-saver more times than i can say... i have virtually no support system in "real life", my mom would rather not hear about anything that might stress her, and my sister with fibro can't stop complaining long enough to hear about anyone else    i don't like to complain, i mean i've been sick 14 years i might as well get used to it... but hubby really gets to me. suffice it to say it seems lately that our dreams have taken different paths, and we shall see how it turns out... for now i'm just grateful to have met you all, this forum has become a second family to me, and i adore the "regulars" and i think of you, and pray for you all often...
much love,
Herby

p.s. i am learning thru my teacher/mentor to redefine Health- i can have CEBV and still be Healthy, it may just be a different "healthy" than most people- i love this concept, and it helps a lot... i'm hoping to get up to NY to meet with her this summer, just me and my daughter  

[Pat in Texas]

It's interesting that you said that, herby!  I think of myself as healthy except for this 'little' issue. 

[faith]

you never know what's around the corner herby, at least you're following your dreams.
i think that's a brilliant way to see cebv.a different kind of healthy.

[HerbLady]

 

[greengirl]

Oh no, Herby.  Any progress with him since you posted this? 

My ex-H used to tell me to just tell myself to feel better, so I think I may know how you feel.  Back then I didn't have a "cause," and often wished for one just to have support.  Now, even though I do, I realize that I don't need a "cause," and, even if I did, it wouldn't make a difference to ex, b/c he just didn't care about how I felt. 

I have no idea what I would do, now, if my H acted this way.  Please take it easy and I am happy you find support, here.