Welcome to our community.

Please consider registering to gain full access!
Registration is free and it only takes a few moments to complete.
Chronic Epstein-Barr Virus Foundation Forum
September 08, 2010, 07:10:24 AM *
Welcome, Guest. Please login or register.
Did you miss your activation email?

Login with username, password and session length
News: We're still in need of donations for the 1st quarter of 2010. Your help is greatly appreciated! ChipIn PayPal
 
   Home   Help Search Login Register  
Pages: [1]   Go Down
  Print  
Author Topic: Martin Salinis 1948 - 2005  (Read 3340 times)
0 Members and 1 Guest are viewing this topic.
admin
Administrator
Sr. Member
*****

Karma: 4
Offline Offline

Gender: Female
Posts: 87



WWW
« on: November 26, 2005, 03:18:00 PM »

Martin Andrew Salinis
Born 9-25-1948
In Detroit, Michigan
Died 10-11-2005
In Shelby Township, Michigan

“You my Sweetie?”
“Always!”
[/b]

Marty and I lived in the same city, and went to the same schools, I knew who he was in high school, the first time I talked to him was when I was fourteen before he went into the Navy. A year later I met his brother, Dave, and decided to date him because I knew two of his brothers and a sister. Three years later Dave and I were best man and maid of honor at Marty’s first marriage. A few months later Dave and I were married, I was eighteen, he was twenty-four. The four of us hung out together for many years, he had two children with Candy, and Dave and I had one son. Soon after our children were born we all were divorced.

Four years later I had some plumbing problems and called another brother of Marty’s to help, he sent over Marty instead. Marty wanted to move out of his brothers house and asked if he could rent my extra room until his apartment was finished being built. We lived together for six months with no physical contact, but lots of talking and doing things together with our kids.

After his apartment was ready he moved out, but we kept finding reasons to see each other, for the kids to play, mail, ect…

One day the ex, Dave stopped over while we were together talking, he said “Hey, what’s going on with you two?” That was the first time I realized that something was “going on”.  We discussed this, and admitted we had strong feelings for each other. Time when on and we developed a physical relationship as well. We were married on July 3rd 1981, and had two daughters, Leeanne, and Tessa.

We have a unique family; all have the same last name, and generally the same genes, as they were cousins before they were brothers and sisters. We raised all five of them, and they have never felt like they were steps, they are true brother and sisters.

We may have been only married for twenty-four years, but we were family for thirty seven years.

Marty was one of 9 children; he had 5 kids, and 7 grandkids.

He was a fireman in the Navy during the Vietnam era.

He worked for 30 years at Ford Motor Company, and had to retire due to his illness. He was diagnosed with Chronic Lymphocyte Leukemia in 2001. He retired on a Friday and started chemotherapy on a Monday.

He loved to ride his 1985 Harley, and we went on many road trips together.

Marty was described by his fellow Autoworkers as a rarity in a factory, he was a gentleman, and kind and helpful to everyone. People were at first intimidated by his appearance, but he was a teddy bear.

He was self taught on computers, and maintained, repaired and built computers for many people.

In 2003 he had several chemo treatments, and almost died, but came out of it to the surprise of his doctor. He spent two years in remission, and was getting ready for a stem cell transplant in March of this year.

In April I got a check up to make sure I was healthy, as he would soon have no immune system. My reports came back abnormal, all my counts were elevated, and they didn’t know why. Also I developed, as did Marty, a sore throat, cough, swollen spleen and liver. We both had swollen nodes in our necks, and our white counts went up. The fatigue for me was debilitating, Marty less so. At the time I had been undergoing testing for multiple sclerosis for 2 months, and was told I had chronic fatigue.

I told his Hematology oncologist that we had the same symptoms and showed her my blood tests. She told me what I had wasn’t related to what he had. I told her three times, but she wouldn’t listen. She continued to give him intensive inpatient chemo for 4-6 days once a month. Before the fifth chemo treatment my neurologist tested me for Epstein Barr virus, he called me and told me I had Chronic Epstein Barr. I sent this report to his doctor, she had her secretary call and say this just meant that I had had chicken pox as a child. I told her again at his next appointment that this isn’t what it meant, and wanted her to test him. She just said why he would show positive like 95% of the population. Then she said that people over forty don’t get mono, and husbands and wives wouldn’t infect each other, because they are in close contact. She failed to realize that his immune system had been destroyed. A year prior he had developed chicken pox after kissing his mother who had shingles, he had had chicken pox as a child, but got it again. She proceeded to give him another chemo treatment, and he was continuing down hill.

Shortly after he had this last treatment he was scheduled for all his testing to prepare for the stem cell transplant, due to start in 2 weeks. The next day he was readmitted do to a fever from an infected port in his arm. In the hospital the staff doctors listened to me and tested him for EVB, he had recently had it. They told me the worst thing you could do is administer chemo to someone with mono, and asked why he wasn’t tested sooner. I tried my best; I don’t know what else I could have done. He continued to go down hill. His main problem was due to hemolytic anemia, which can be caused by EVB, his spleen protruded from his abdomen by this time. His blood counts were so low; they couldn’t transfuse him fast enough. We finally decided to bring him home, and would take him in as an outpatient for transfusions. He died on a Tuesday in the night, at 2:26 A.M. with me cuddled up next to him, in our own bed, whispering in his ear about our life together. It was the worst, yet most precious moment in my life.

His doctor had stepped aside and turned his case over to a colleague three weeks before his death. Did she realize that she was wrong? Doctors kept telling me I was not contagious, but I don’t believe it, I don’t think they even know. This isn’t a silly child’s kissing disease, it is deadly.

Patricia A. Salinis

« Last Edit: November 27, 2005, 06:45:08 PM by admin » Logged
pals1107
Guest
« Reply #1 on: November 26, 2005, 11:17:44 PM »

Thank you for posting Marty's story. I have sent it to the center for disease control.
I just hope someone will take this seriously, I feel it took my husband from me. He didn't need to die so soon, they told me CLL patients live 20-30 years, he made it four and a half years.

They told me I wasn't contagious.(?)

I wasn't ready for this, emotionally, or financially, we thought we had time.

We had plans for the future together, we also though if something happened I would be financially secure. None of that was true.

Please do what you can financially, before you wind up like I have.

And stay away from people with no immune system.

Pat
Logged
Heavensent
Guest
« Reply #2 on: November 28, 2005, 12:27:52 PM »

I am so sorry for your loss.   This is heartbreaking!
Logged
Aaron Brown
Guest
« Reply #3 on: December 06, 2005, 06:42:19 PM »

I sincerely feel for you and will pray for you.
Logged
pals1107
Guest
« Reply #4 on: December 20, 2005, 07:55:55 PM »

Smoking gun!
I just met with an attorney, he feels we have a case, he said the smoking gun is the fact that I have CEBV, and he had mono whitch wasn't tested for before chemo, even though I told her we had the same symptoms. He was tested finally 4 weeks before he died, and I have the report that says he had recently had mono.

Unfortunatly I may have to have this memorial removed from the site before we file, I will let you know soon about this.

Pat
Logged
pals1107
Guest
« Reply #5 on: April 29, 2006, 12:24:18 PM »

Just updating everyone, we are still fighting to get all his records released from the hospitals legal department. Very slow going, they are not cooperating.

But in the mean time I am suffering from it. I have to have been RED FLAGGED, as a do not treat patient.

Since this all started I have received notification from 3 doctors that they are no longer willing to have me for a patient, two by registered letter. One was kind enough to call me and tell me, he can do nothing for me. This was the ENT who tells me I have dsyphagia, and neurological hearing loss. He said you don't need to come to see me again.

Another doctor, MS specialist, tells me d not go to anymore neuroligists or specialists. I am perfectly healthy and have no neurological problems.
He refused to even read any of my reports from hospitals and doctors. In them they state the above mentioned neurological hearing and swallowing problems, along with neurological vertically doubled vision problems loss of preception of the color red, desensitised eyes, loss of perferal and central vision. Abnormal EMG's, numberous brain lesions, on and on.

So in this fight to make the doctor that killed my husband pay, I have lost any hope for having my own problems addressed. I am left in the cold.

So be it, I want her to pay!
It is getting so hard to work anymore, I tell the doctors this, they say well then QUIT.

I have a $32. a month pension I can draw on in another 13 years, other than that I don't know how I could survive on the $960. a month I get from my husbands pension, and now they will be taking money out to pay for health insurance. between this and the $16,400 I make a year working full time, it doesn't pay the bills now. The $50,000. insurance policy is down to $36,000. already to make up the difference.

Why do I need health insurance? I don't get any care. I guess if I have an accident, break something, or need stitches it would be useful.

Sorry for the venting, I am becoming very bitter toward the medical community, as to be expected. They are beating me down, I suspect to make me drop this case. But I won't do it.
But I am afraid that this may effect my son and his 4 kids, if I loose everything he will loose his house, as it is in my name.

I just pray that this attorney will not abandon me, as one has already, he gave no reason in his registered letter. But this happened as soon as he contacted the hospital trying to get my husbands records. He was so gun hoe on nailing them, until then. I wonder what they said to him to change his mind? I tried to call to find out a reason, but the attorney's assistant told me not to call this office again, we will not speak to you.

I trust no one anymore, I believe in nothing, ........but GOD.
Pat
Logged
Teresa Johnston
Guest
« Reply #6 on: May 01, 2006, 12:09:59 AM »

Pat,

I am so sorry you have to go through all this. It is not fair! In your last line you said who you trusted, God, he will take you through this.
I will pray for you. Just keep trusting, He has done so much for me!

It allways seems like I'm at the last point, but them he comes through for me. Just don't give up.

If I can help in any other way, just let me know.

God Bless You,
Teresa
Logged
piss_ant_
Guest
« Reply #7 on: May 18, 2006, 08:40:51 PM »

Did any of those doctors give you a reason for saying they didn't want you coming back? That is just crazy.
Logged
pals1107
Guest
« Reply #8 on: May 19, 2006, 06:11:39 PM »

The old neuro just sited patient/doctor differences and a break down in communication. The Ent said there was nothing he could do for me that I need a neurologist, The other neuro said there is nothing wrong with me, but wouldn't read the reports from other doctors, he said he has his own set of things to go by.

I really think it is a law suit fear, word gets around, they don't want a patient that might sue, so they would rather not take that chance.

Pat
Logged
pals1107
Guest
« Reply #9 on: August 27, 2006, 08:59:12 AM »

Update, my attorney backed out of the case, now I have to find a new one.

Funny thing is he said there just wasn't anything in the records that supported what I was saying. Well I pick up what records they had released to him and I can see why he said this.

The only thing they released to him where hospital addmition records, not one scrap of paper from his doctor! I believe the hospital or insurance company got to him, you know, you scratch my back on this one and we'll throw you some work in the future type thing.
Who knows, I am going to call him and point this out to him that he never received any of HER records and see what he says.

For over 10 months these people have been doing everything they can to stall and block me making any progress in this.
Pat
Logged
brendan
Guest
« Reply #10 on: August 28, 2006, 05:40:00 PM »

Pat

really hope this is sorted for you, but take care of your own health and well-being
Logged
pals1107
Guest
« Reply #11 on: August 28, 2006, 05:49:15 PM »

Brendan, this is very slow going, I just don't have the energy to get to stuff like I should. My health,,,,,,,,,,,,,,not good. I just seem to be getting worse. I'm under no treatment other than to take a baby asprin, and my provigial. The only doctor I see is a hemo/onco, and I have no clue what he is thinking. But I don't imagine it is good, he just keeps running different cancer tests, and insiting I see a neuro, and get this ovarian cyst out I have had for 10 years. But no gyn will touch me so far, they say I am high risk.

If someone told me I had less than a year to live,,,,,,,,,well right now I would believe them. But most doctors (except the hemo) say I am perfectly healty. This isn't life, it's hell, and I am getting awfully tired of it.
Pat
Logged
Pages: [1]   Go Up
  Print  
 
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.11 | SMF © 2006-2009, Simple Machines LLC Valid XHTML 1.0! Valid CSS!
Page created in 0.162 seconds with 21 queries.