M.E.(Mono)/Chronic Fatigue Awareness Week

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[brendan]

the week of the 8th of May is M.E. Awareness Week in the UK.  M.E. or Chronic Fatigue is wat we called Mono over this side of the pond.

There is also a blue ribbon to mark the campaign (similar to the red AIDS ribbon)

I have done a newspaper interview and will be on the radio next week to raise awareness of suffers like ourselves.

[woody26]

Hey thats cool Brendan. Which paper/ radio station is it? I guess it will be a local one?

[brendan]

Yea im afraid its only the local BBC station and local press im doing.  There is a society who are looking after the broader NI press - IM not that important (well not just yet lol)

[brendan]

Well two things this week firstly - I have had a big set back which was actually well timed cause I have managed to get alot of press coverage locally given that tis ME/CFS

Yesterday i did a half hour radio interview on our local BBC station which was also picked up by a national BBC station - there were lots of calls into the programme inculding some from england - mainly from the family of suffers looking for advise and help

THe local press have also covered it and our main local paper is doing a feature on EBV/ME/CFS - the fact I am well known in the local community has given it a bit of an edge and the editor was really keen to carry the story - so back to what Pissant said a few weeks ago bout raising awareness of ebv

only problem is it drains whatever energy you have out of you - but we shall battle on

[piss_ant_]

That's great brendan! I'm really glad to hear about the word getting out.


We all suffer in silence because we're not organized. 

read this article:
http://www.dailymail.co.uk/pages/live/articles/health/healthmain.html?in_article_id=386443&in_page_id=1774

[brendan]

nice to see you back PA

I got loads of press coverage locally - human interest story apparently - and since then been stopped by a lot of people in the street who know someone who has ME/CFS and asking loads of questions - the fact Ive had a bit of a set back myself this past few weeks hasnt helped and Ive been asked to set up a support group locally which i dont have the energy to do, which is a pity but least ive started a debate.

It has also helped in that there was an article in the national press about actress Barbara Windsor (well known actress in the UK) who was off work for over a year with EBV and she has been talking about the effect of the illness on her life - so when people ask me what wrong with me I just say i ahve the same illness as Barbara Windsor - which helps