The CEBV.org website and forum was created in 2004. I started it due to my own frustration of having no support or resources with my own struggle of the disease, which I contracted in 1999. It is my continued strong desire that we will be able to support and encourage all who come to our site and forum looking for answers, support, and encouragement.

The Forum has become quite popular amongst the CEBV community as it allows our members to interact on a daily basis. Many register to post questions, provide advice, share their stories, suggest physicians, and much more.